Sunday, February 17, 2013

I Pray to You O LORD!


Often times when I write my prayers it becomes easier for me to become personal with the Lord.  It also gives me opportunity to check back in to see how He answers.  I'm willing to be a bit vulnerable just now in sharing with you what I've been talking to the Lord about most recently.

It's me Lord, You know, your friend that would rather be outside permitting the snowflakes to blow in my face or the sun to shine on my shoulders into soul soothing favor of contentment and tranquility rather than sitting here dreaming about it.  You know well the practical and independent aspect of me is ever seeking for ways to burn energy.  You also know well that in my current condition it's a challenge to always find other friends that are willing and available to be my hands.  

So here I am revving an engine that has a damaged link between the transmission and the rest of the drive-train downstream.  It's kind of like only one third of this army can hear the general while the other two thirds stand on good-faith-alert trusting that the general will return some day with orders from headquarters. 

Since it is apparent that doing something other than that which requires hand and finger dexterity and activity from all the other muscle groups between there and the tips of my toes, why does the desire for muscular motion continue to remain vibrantly alive?  Is it possible to will an axon into eventual connection to the other side because the desire to reconnect is so great, kind of like Romeo and Juliet reconnecting in spite of so many challenges after so much time had lapsed?

My fleet of mobility methods continues to grow along with my dreams to go farther and for greater periods of time.  I just received a fabulous taste of motion on the ski slopes of Colorado which has served well in adding fuel to the fire of desire to stay in motion.  The freedom was such release for those three days!  But the freedom I seek doesn't come free.  In fact that freedom is far greater than me.  I'm home now where two thirds of the occupants of this establishment seem to be content with far less adventure than I am capable of accepting for myself.  This hillside has a fabulous view which works fine for sitting still after my restlessness has been tamed with physical activity but at this moment it feels more like a cage.

I pray to you, O LORD, in the time of your favor; in your great love, O God, answer me with your sure salvation.  Rescue me from the confinement of this cage; do not let my talents waste; deliver me from physical limitations, from that which chokes my freedom.  Do not let my boundaries engulf me or the lack of resources swallow me or the cage crash in over me.  Answer O LORD, out of the goodness of your love; in your great mercy turn to me.  Do not hide your face from your servant; answer me quickly, for I am in trouble.[1]

My dreams still include:

  • ridding my handcycle coast-to-coast
  • having access to an RV to simplify the lodging logistics of that trip
  • being able to live on a flatter piece of property that permits easier access for this wheelchair I am depending on and easy access to roads for safe handcycle riding right from the house and close proximity to rivers and lakes for kayaking
  • a house with covered porches and sufficient interior space I can call my own on this property
  • a large enough garage on same property to shelter my recreation equipment and also have room enough for workspace for projects as willing hands come to my aid
  • a wheelchair accessible tree house where I could come to the quiet alone or hang out on a limb with friends in the quiet


So Lord, if these dreams would not interfere with YOUR will for my life please place me where these dreams can begin to materialize.  If these dreams are subject to distract me away from your kingdom please dissolve them into something even better than I could ask or think.  Thank YOU for YOUR time LORD!



[1] modified from Psalm 69:13-17

Wednesday, February 13, 2013

Going Downhill Fast


It was 1980 while in college I tried downhill snow skiing at Winter Park, Colorado for the first time.  By the end of the first day I caught on well enough to be running black diamond slopes.  I thoroughly enjoyed the entire experience of downhill snow skiing.  Are you surprised?  It was so refreshing to inhale mountain air again, view the majesty of big mountains and take advantage of gravity on a slippery slope.

While there at Winter Park for the first time I noticed instructors helping the disabled get involved with the snow ski experience and was impressed that there were volunteers willing to be there for the disabled and that the disabled were willing to experience the challenge.  Little did I know I would personally benefit from such unselfish volunteer instructors years later.

Fast forward to November 2012.  I received a call mid-November from Sharolyn Snyder from Paradise Ranch over in Springfield Tennessee.  Recognizing me to be active outdoors with camping, handcycling, kayaking, and wheelchair she called to see if I would be interested in joining the snow ski experience for disabled at Winter Park, Colorado in January 2013.  I told her that I would be interested in going but probably couldn't because the expense of going would be prohibitive for me.  Sharolyn called me back a couple days later saying that she had found a sponsor for me if I still wanted to go.  How long does it take an outdoor junkie to reply to an offer like that?  I WAS IN!

Airline tickets were soon purchased for the January 14-18 experience.  What would it be like skiing in my paralyzed condition?  I would soon find out.

The next few weeks after that offer to go was spent in checking to make sure I had all the gear I needed to stay warm on the snow-covered slopes.  Much of the gear I already had for handcycling in winter conditions.
  • Ski pants
  • Very Insulated Jacket
  • Ski Goggles
  • Helmet
  • Long Underwear
  • Gloves/Mitts
  • Insanely Insulated Boots
  • Balaclava (covering my head and face)
  • Go Pro Camera to record the experience
My sister, Malinda, volunteered to drive me to Nashville airport on Monday afternoon, January 14.  I felt like somebody important as I was delivered to the departure curbside.  A quick transfer to my wheelchair placed me on a roll that eventually ended beside a king size bed in which I would be sleeping that night.  Of course there was a lot of amazing hands, wheels, and wings that helped me span the distance from Cookeville, Tennessee that morning to Winter Park, Colorado that evening.  I didn't even have to worry about getting my boarding pass at the kiosk, and check my luggage in (thank you Jillian and Andrew)!  Even getting through TSA, to the correct gate, on and off the plane, to baggage claim, into and out of the rental vehicle was made so simple for me.  All I had to do was sit there and watch the expert travelers and caregivers take care of everything!  Thanks to everyone involved!

Tuesday morning (about 0630 in my room) started the flurry of activity necessary to make it to National Sports Center for the Disabled NSCD by the 0900 appointed time.  I was very impressed with the teamwork required to assist with preparing breakfast, dressing for cold weather, help those of us that needed help with ADLs, get us fed and out the door to meet the appointment time on time.  Happened all three days of skiing.

The NSCD volunteer ski instructor staff were well-informed ahead of time what each of our specific needs were to make skiing a custom fit for us.  My instructors for the day would be Tim and Loren.  They were extremely sensitive to my needs and invited my communication for maximum success of my snow ski experience.  They worked well together and with me.  It felt SO good to be back in the crisp mountain air although I discovered that by the time I arrived back at the condo that evening 20 below zero proved a bit frisky to my ability to stay sufficiently warm.  It took most of the night for me to warm up.

Wednesday morning was a repeat of Tuesday morning with the exception of a few minutes later start, yet we still made it to the NSCD on time.  The majority of our Tennessee group chose to go snowmobiling today but I was there for snow skiing so snow skiing I went.  I am so glad because something clicked well with the instructors I had.  Emily and Beck had excellent team working skills.  Emily works full time with NSCD.  Beck is from Alabama where he does lawn maintenance by summer and ski instructor by winter.  Emily is exceptionally good at communicating directions from behind my sit chair as she tethered me down the slopes.  Today we were taking more risks than yesterday... and more crashes!  I felt that I performed better at a higher rate of speed.  Four o'clock quitting time came much too quickly.

 Me and Tim stopping long enough for a photo before heading over the hill behind us.

By Thursday morning we are beginning to develop a rhythm for getting out the door on time for our NSCD ski instruction appointment time.  Rather than making multiple runs with the rental SUV a local bus service with a wheelchair lift was used to get us to the base of the slopes.  Today Tim and Rich were assigned to work with me.  I had a positive experience with Tim on Tuesday and was glad to have some familiarity with his style.  Brent and Sharolyn Snyder made arrangements with Tim and Rich to be at the top of the chair lift so they could get pictures and videos of my ski experience to add to their slideshow at Paradise Ranch.  Brent and Sharolyn would ski ahead and video as we approached.  During the morning I learned that there are different instructor styles that work for better or for worse for me.  I crashed a lot more this morning but noticed those crashes happened at slower speeds.  A third instructor was added to the mix during the afternoon.  Patrick was younger than Tim and Rich and much more aggressive when it came to getting me in position for the next chairlift to the top.  By afternoon it was beginning to click with me how to carve turns for controlling speed and direction. 


A well fed fox at our condo.  Notice the size of his shadow.

Before we left the condo that morning it was discovered a well fed fox was curled up on a sunlit snow bank near the garage entrance at the base of the condo.  An attempt to draw him close was made with leftover breakfast being tossed at him.  He gobbled everything he could possibly fit into his stomach and then carried a muffin to a snow bank where he dug a hole and then buried it with his nose.  The leftover breakfast scraps also interested the raven's and magpies.  I counted at least 15 ravens and five magpies hopping around for their part of the leftovers.  The Fox finally gave up trying to defend the food.

The amazing teamwork continued for our Friday return trip from Denver to Nashville.  We left Denver at 61° and arrived in Nashville with 47°.  Doesn't seem quite right.  Malinda met me at the curb where I was quickly inserted into the front seat of her van and my luggage loaded.  I counted 54 transfers Andrew assisted me with from Monday through Friday.  It's a good thing I'm fairly lightweight and he had sufficient strength for picking me up out of my wheelchair to insert me other places such as vehicle seats, the bed, etc.  It was good to sleep in my own bed that evening.

The overall snow ski experience was so liberating to my mountain and motion starved gypsy blood.  I am told that in order to become competitive at snow skiing I will need to graduate to a mono ski sit chair.  I feel I have a lot of work ahead of me with the bi-ski sit chair before considering a mono ski which means I need to spend a lot of time in snow country.  So many details would have to be overcome in order to get there, details such as how to cover the cost of living, a snow worthy vehicle, caregivers, lift tickets, instructor fees, and much more!  Unless some pretty amazing financial gymnastics are discovered I will probably need to discover contentment in waiting for spring with more kayaking, handcycling, and wheelchair pushing.  The same January snow ski trip with Paradise Ranch in 2014 will be here before I know it.